It has been several months since our blog was updated with recent happenings. Many of you have kept up with our family through facebook, texts, calls and emails. It has meant a great deal to us as we have been going through trying times.
This previous October our precious baby boy, Leo David was born. 8 pounds and 4 ounces of precious, handsome baby! He is so sweet and good natured. He and his brother together bring me SO much joy! It cannot be expressed in words!
Soon after Leo's birth we started to realize something was different about him. He began having "no no" tremors. His little head would shake side to side constantly. We took him to a neurologist at Children's Mercy Hospital in Kansas City. He told us he believed he had a common condition called "Spasmus Nutans". If Leo did indeed have Spasmus Nutans, he would eventually grow out of it. Just to be sure the Dr had us schedule and MRI. On the 23rd of March Leo had his MRI. He did very well. I was more upset than he was. For the next few days we waited for results. Finally, we got the call. His results came back abnormal. Leo has Joubert Syndrome. It is a rare brain malformation. This means that he has an underdeveloped cerebellum, which is the area of the brain that controls balance and coordination. He will most likely need physical, occupational, and speech therapy. Based on his MRI and his milestone chart he may have a milder case. Unfortunately, we cannot determine how big of an impact this will have on his everyday life until he is a couple to several years old. As I have said many times before, Leo is still precious and perfect to us no matter the circumstance! We are so blessed to have him.
For more information about Spasmus Nutans look here:
For more information about Joubert Syndrome look here:
Leo is now 5 months old. 16 pounds and 7 ounces. 25 inches long!
He is happy and healthy. Still just as sweet as ever!
After learning about Leo and taking that emotional blow it makes it rather challenging for me to make this next announcement.
Andy and I are getting a divorce.
This separation had been contemplated before the strains of Leo's condition hit us and has only been decided after all avenues had been exhausted. We are sad to feel that we may have let people down who have looked up to us, but we truly feel that this is the right thing for us.
I am so grateful for a supportive family! I am excited to be moving back to Wisconsin and living so close to their comfort.
We thank all those who have shown their support through this time and we pray for happy new beginnings.
Elizabeth you are beyond inspirational, may God bless you because you truly deserve it.
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